|
Personal
Experiences
Raymond's Story
I am Raymond Paul Morgan. I am 21
years old and I live in Bangor, Gwynedd, North Wales. I suffer
from Asperger's Syndrome. This is my story
|
Asperger's Syndrome (AS) is a condition I have had all my life.
I have discovered AS is a mild form of autism and it affects people
differently. Mine affects me through sensitivity to noise. I was
diagnosed at 17.
It all began when I was about one-and-a-half-years-old when, during
my birthday, I did not like loud noises, such as balloons bursting
or crackers being pulled. I also didn't like thunder.
I didn't have many friends at school - I was often bullied because
I was different. When I was in the small school, I got picked on
by the teacher because I had problems with maths and once he humiliated
me in front of the pupils. I was glad when I left that school.
Then I went to secondary school, Ysgol Brynrefail. I never went
out with the other pupils and I realise now that was the beginning
of my problem of not being able to socialise. But I started karate
and I used to do bodybuilding. My other hobby was steam trains.
I once wrote a letter to the newspaper in support of the new Welsh
Highland Railway and they published my story in the paper! I was
very proud.
When I was 14 we moved to Bangor and lived on a council estate
called Maesgeirchen (Maes G). My family and I had a very difficult
time there because the children would throw stones at the windows
of our house, even on the first day we moved in.
My first real problems with sensitivity to noise appeared when
I went on a bus to town, because there was a very small child and
she started to cry - that made me very stressed and upset. Then
we went on holiday to Bulgaria. The noise of the children didn't
bother me there too much, but when I turned 15 things started to
get worse. In 1997 I started to wear ear plugs. I went to Marmaris,
Turkey, in August that year, and my sensitivity to noise became
much worse. At the end of that year, we moved to Tan-Y-Maes, another
council estate, but very small with only about 12 houses. But there
were a lot of children there. There were also lots of dogs. At first
I had the front bedroom, but during the summer months children were
playing football outside and they were screaming and shouting and
I was very sensitive to the noise. Then I moved to the back bedroom
but the dogs in next door's garden barked all the time and things
became worse and worse.
I tried several suicide attempts (I tried to suffocate myself with
my pillows) because I did not know what was going on inside me and
I started to get depressed. Finally in 1999 when I was 17 I was
diagnosed with AS.
That year me and my mother went to London for a holiday. I had
a lot of difficulty coping with the noise there because I had to
go on buses and they were overcrowded with people and there were
a lot of small children on the buses. I tried to block out the noise
by listening to my personal stereo but I could still hear the noise
of the children and once I got angry. I banged on the back of the
seat and the bus driver told me and my mother to get off the bus.
When we went back home I had to go to college. I sometimes went
to the shops and I had a friend there. We went to Safeways and outside
the store there was a little girl aged about two, and she was calling
for her mother. I lost my temper and started screaming. My friend
tried to calm me down as we walked away but I kept on shouting.
This was all because of the sensitivity to noise and probably because
of my bullying.
In 2000 I started to have fantasies that stopped me looking at
television or even at people. I closed my eyes all the time when
I was indoors and when I went out I had to wear very dark sunglasses.
I couldn't even look at my grandmother or mother. I went to Hergest
Unit (a mental institution). I became very depressed and I was prescribed
Resperidone, which helped to lessen the fantasies and the sensitivity
to noise. I became very depressed and was prescribed Seroxat and
later Procyclodene. But I was still sensitive to noise and I did
not like the noise at Hergest because of the alarm testes and sometimes
children would visit the unit and I was getting frustrated. I was
then sent to Coedlys in Llangefni for a few months. The second time
I went there I really did not like it. I was badly treated here.
I can remember we had to finish the food and once one of the patients
there was forced to eat all his dinner. One day I went to sleep
and when I woke up one of the staff walked in and told me off because
I had missed tea. She said: "I have called you five times for
tea, I hope you sleep tonight". I hated the noise there because
people were talking loudly and laughing and I felt very lonely and
depressed. I remember one occasion when I left the table, one of
the staff grabbed my arm tightly and pulled me back to the table.
I had told them I had AS but they didn't try to understand.
Sometimes I was forced to go to the shops but I didn't like to
go because of my condition. One of the staff nurses forced me out
of the van. Because I did not want to go into the shop she started
to lose her temper. So I had to wait outside and there were children
coming in and out of the shops. Some of the children were making
a lot of noise and I became very stressed. Then we went back to
Coedlys. I could not socialise with the people there because it
is part of AS. There was a nurse there in her 40s. She was horrible
and very bossy. I could understand that I had to learn to clean
the bedsheets and clothes but she did not treat me very well. Sometimes
there was a man who would come in and check the fire alarm and I
would get very frustrated. I can understand it is important to check
the alarm, but the noise was bothering me. I was glad when I left
Coedlys, but when I went back home things were getting pretty bad
because every time I took my ear plugs out, I got very stressed.
If I wanted to watch a film I heard the dogs barking and it made
me angry. So I kept my ear plugs in all the time. I didn't like
people knocking on the walls or drilling or the loud music from
the neighbours' houses.
My grandmother lived in a flat. The man upstairs was knocking something
into the wall. My grandmother was out at the time and I lost my
temper and started shouting. I also swore, then the knocking stopped.
I didn't tell my grandmother. But I don't like her living there
because the man upstairs has a brother and sometimes they play music
loudly and I can't rest.
Then my mother and I moved to a maisonette opposite my grandmother.
It was much quieter here but now I'm also sensitive to the noise
of the seagulls and I get annoyed and angry when they appear, which
is all the time because we live very close to the sea.
In 2001, when I was 19, my grandmother and mother went on holiday
because they needed a break. They both cried a lot when they left
me. But I can cook small meals for myself. I was very sad that I
couldn't go with them because of my condition.
I used go to my grandmother's flat every day and stay there all
day because I could not go out. I slept most of the day. I could
not go out because there were children around and I was sensitive
to the noise they made and also to the noise of dogs and car horns.
I only walked out at night time when people were not around.
I have tea at my grandmother's flat every day because the oven
in my mother's flat does not work but I do nothing in my grandmother's
flat. It makes me feel very depressed and very lonely.
During the summer of this year, my fantasies returned and I was
sent back to Hergest. I stayed there for two months and I hated
it. There was a lot of noise from the other people and they had
to test the alarms quite often. My doctor did not try and understand
me and I even swore at myself in front of him because my life was
hell and I wanted him to know how bad I felt. He was very unsympathetic.
But while in Hergest I became very determined to get better and
to try and make myself happier. I didn't want the drugs because
they just made me sleep all day. Before, when I came off Seroxat,
I had very bad fantasies - sometimes food would turn into horrible
things like worms and snails. So I did not ever want to go back
on Seroxat. So I told my doctor that I would not take any more tablets.
The doctor felt there was nothing more he could do for me so I was
sent back home.
My sensitivity to noise is still very, very bad. It's like somebody
hitting me with a metal bar full force and the noise is violent
and makes me angry. I am depressed because of this and I feel like
trying to kill myself. I feel my illness is like the pain of death
- the force of the noise feels like it's attacking my heart and
goes on for a long time. When I hear a noise even for a second it
actually lasts for at least ten minutes - the effects are much worse
than the noise itself. Even listening to music doesn't help - the
noise just carries on.
I would like more than anything to live a normal life, just like
anyone else. I would love to have a girlfriend but things are so
complicated for me. Some parents out there might recognise some
of these symptoms and I want them to be aware that their children
might have AS. I want them to make sure they get as much help for
their children as possible. I was very unlucky because I was diagnosed
much too late to be able to get any proper help. I am angry at the
way I have been treated - especially now that I have pretty much
been left to manage on my own. The health service here is terrible
and everyone who has dealt with me has been unsympathetic. They
don't even try to understand what AS is and they try to make me
do things that make me stressed, like going out for a walk.
But I know it's important to try and stay positive for the future.
So I am getting myself fit and losing weight. Hopefully when I feel
better about myself my sensitivity to noise will decrease and I
can live a more normal life.
I just want a better future.
Raymond Paul Morgan. September 2003.
|